An Update on my MS

2011-02-11T20:27:00.000-06:00

Hello out there! : )
I have missed writing and keeping in touch with all the wonderful people I have met through this blog, especially my photo buddies. I feel like I am going through photo withdrawl! : )

Thank you to all for the wonderful encouragement you have given me through this topsy turvy time of being diagnosed with my RRMS. Here's an update for those of you who have asked and who care.

I am done with doing brain scans and spending thousands of dollars on blood work, EMG's, CTA's and all the other acronym tests. I am done spending hundreds of dollars on medicines that don't work to alleviate my symptoms or that give me depression and/or suicidal thoughts. I would much rather deal with the effects of my MS than put myself through the torment of trying drug after drug to no avail. I have met too many people with MS in my local chapter support group who are just as fed up as I am with the conventional medicines lies and deceit. I am solely using Chinese, Ayurvedic, and alternative treatments for dealing with the effects of my MS, and I am 100% happy with that choice!

My world has been turned upside down and things are no longer the way they used to be. My day is determined now on how I feel and how much I am able to do comfortably. I walk with a cane now cause the left side of my body always seems weak and heavy. It goes numb and tingles all hours of the day and night. I walk into walls sometimes and unexpectedly will just lose balance and fall unable to even lift myself back up from the floor.

My left eye blurs without notice, it just decides when it is a good time to go union on me and does so. My word recall is much slower now. I can stare at a kleenex box for minutes on end trying to figure out what it is called and can't for the life of me remember what it is. I revert to explaining what I am trying to talk about, you know, the things that you blow your nose into and if I can't explain it then I just point to it. I forget what I am talking about right in the middle of my conversation.

I get horrible headaches, sometimes three or four times a day that medicines can't take away.

I am tired. Constantly tired, like I've run 3 marathons in one day without any sleep. The fatigue is what really takes away from my day. It's the ultimate exhaustion. I am able to work for two days with one day of rest after and that seems to be working for me right now.

My body has jerking movements and uncontrollable shakes/tremors, especially at nighttime. Night time can be the worst.

I am heat sensitive now, if I am in a room with the heater on or somewhere hot, I immediately begin to feel my symptoms creep up on me. The left side of my face gets hot and before I know it, it starts to tingle and numb and may be like that for minutes or for hours. There is no rhyme or reason to how I feel now. I can't plan a day in advance, cause I really don't know how I will feel when I wake up.

I have high hopes for the alternative treatments though, especially the Chinese herbs and treatments! I have met many whom have had great success with it and I have found a wonderful local Chinese herbalist that I will be working with soon. There is nothing about this that I can't handle, and the cool thing about that is that God knows that. And since He knows that, I know that. There's great joy in knowing that God knows I can handle this! That's something to never lose sight of. There are so many young thirty something mothers I have met with MS lately and the support and fellowship of them is amazing. It's nice to talk to someone else who experiences the same things, thoughts and emotions that I do with my MS.

Thank you to those who have prayed for me and have kept me in their thoughts. Thank you to the ones who have sent me uplifting and joyful emails. This is just another one of those times to give God glory and be thankful. With His guidance, I know I will be just fine. : )

Fresh Start

An Update on my MS